Posted by: ayakoaya | June 25, 2008

My First Surgery: Laparoscopy for Endometriosis

I went to the doctor’s office yesterday for my pre-op appointment. I have endometriosis, according to Dr. Chun. Unlike the appointment where he diagnosed it, it was more tense since I had to sign the consent form. His attitude the first time, was that this is a minor surgery with nothing to worry about. This time he had to mention risks, and said I could die… but also that I could die every time I get behind the wheel of a car. It felt scary to see risks on the consent form like: damage to nerves, bowel, bladder, uterus, and any adjacent organs…

Reading the risks on the form had me worried, and he examined me one more time and said since I seem to feel the pain from his examination, it’s probably bad. He couldn’t answer a lot of my questions exactly since he kept saying that it would depend on how bad it is when he goes in. So, last appointment I had the relief of hearing someone say it was endometriosis and not possibly cancer, and also say: “you scared? no need to be scared, minor surgers”… so I was surprised to hear it might be “bad” when he goes in.

I was training for my first marathon, but am not as sure it will happen this year since he wasn’t sure how long I won’t be able to run, and shin splints slowed down my training in the beginning. I only just recently started running up to 6 miles… and now I’ll have to take a break when the surgery happens. He can’t say how long cause it’ll depend on how the surgery goes and what they find.

I don’t experience any pain during my periods and didn’t realize anything was wrong with me, so I’m not super eager to have this procedure done – but I guess it has to be since he says it will only grow inside me. I hear he’s a good doctor, so I’ve got to believe in him and hope for the best.

On another tangent:
I can’t say I’ve had pleasant interactions with his nurse on the phone. Her bedside manner is not soothing in any way. I told her it felt like she cut me off on the phone when I started to ask any questions, and she said: “We never discourage questions.” Funny how that never comes across when speaking to her and she always comes across as rude. But maybe she doesn’t mean to be. I don’t know. I can’t say, but it’s bummed me out when dealing with the office that I always had to go through her directly, cause she has not been pleasant, but rather condescending each time I’ve had to speak to her. Even the other doctor’s offices they referred me out to both seemed to have a hard time since she never sent them any info about me. One surgeon who had to clear me asked: Are you here for me to do your surgery? And I had to explain to him that he was clearing me for Dr. Chun to do surgery. And my primary care physician’s office was like: they have to send us something, please call them and ask if they’ll send us some forms – but Dr. Chun’s nurse told me just to ask them to write a memo clearing me for surgery because i had asthma in my younger days and she wouldn’t send them anything. So I had to call the PCP nurse back and tell her and she was like: “What!? What’s her name? I’ll call her. We can’t just do stuff without some kind of form or something from their office.” But yeah, it’s been stressful managing the whole thing and dealing with people who don’t seem to like their job or working with patients.

Dr. Chun seems nice enough. And I wish I could switch to him from my current gyn since she is so far from town and seemed to make me have to deal with more than i needed to instead of referring me out earlier. But when I asked him he said he couldn’t become my doctor since she referred me, that she was my doctor

No matter what happens, I need to switch doctors cause I want one in town and one who has better exam hours so I don’t have to miss so much work.

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Responses

  1. […] His attitude the first time, was that this is a minor surgery with n= othing to worry about. This time he had to mention risks, and said I could = die=85 but also that I could die every time I get behind the wheel of a car= . …Posted from By ayakoaya […]

  2. For any women with endo who find your site, this is an amazing place – the Center for Endometriosis Care in Atlanta

    centerforendo.com, also look under ”educational articles”

    and a chat board

    http://forums.obgyn.net/endo/ENDO.0806/date.html

    also, the pill and other things can lead to low progesterone, which can cause migraines

    check out johnleemd.com

  3. Thanks deedee!

  4. Dear ayakoaya,

    Hey, my name is Sahar, I am with http://www.weareendo.org. There are a prolific group of members on the website that I know would be keen to read your blogs. I have been reading your blogs on Endometriosis and I think that weareendo.org will be of great interest and use to you. Amongst us, there are dedicated users that will avidly read your blogs and it would be great if you could come and leave your comments/thoughts. Below I have given the guest access information. Look forward to hearing from you.

    website: http://www.weareendo.org

    username: guest1

    password: weare1

    Best,

    Sahar Hafeez

  5. Mahalo Sahar

  6. Tahnks for posting


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